So… things have been tough lately. H made it through surgery ok but it was a rough start to recovery. The last ten days have been a heavy-duty wakeup call in understanding the impact that his illness has on our lives.
I vacillate between being deeply heartbroken for him, for us, and for myself. This isn’t how either one of us ever pictured our time together. I am aching to go on a bike ride with him and I know he aches to feel the wind on his face.
I think I have gained every pound he has lost. I wonder if at night, they secretly move from him to me in an effort to avoid contamination by the cancer cells. We eat the same amount of food I think… and yet I am the only one gaining weight. It may be that I still love to eat and he is sometimes only eating because I force it in front of him, sometimes with little compassion and too much energy. I feel afraid when I notice how thin he is becoming.
I try not to notice every time he shudders with the agony of the bone lesions because it stirs in me an urge to scream for him but it never comes out that way. Instead, it emerges as impatience and frustration which is equally infuriating because that is never my intent. I want it to go away so that he can smile again, drink a Mojito, and mow the lawn because those are the things that give him pleasure.
We never committed to one another in a public forum; we don’t have a ‘legal’ union. However, on that beach in Vieques without a stitch of clothing on, in broad daylight, as the waves gently crested across our knees, we promised to trust one another and to tell the truth – no matter what. We didn’t promise to stay together “in sickness and in health, til death do us part” but I am not ready to let go of him. I don’t care that he is sick – I still want to hear the sound of his breath above the roaring fan at night as he snores loud enough to attract the zombie apocalypse. I still want to hold his hand while he man crushes over Pete Nelson or Chip Gaines.
The doctors say that the cancer is managed; the treatment is working but we stay confused about that because in nine months, a lot has changed. Right now, it’s better than it was thirty days ago so we stay hopeful that these last attempts at pain management will continue to mitigate his discomfort. And we dream. We’re making plans as if it was last summer when we hopped on our bicycles to enjoy the sounds and temperatures of early summer evenings. We continue to think about things we’ll do ‘when he feels stronger’ which feels much better than thinking about all the things we may never do again.
And I attempt to do what I tell people to do every day. I deliberately work at self-care. I write. Sometimes it’s for just me and then there are times I have something to say that I know is relatable or helpful and I share. I go on walks. I talk with friends. I read. And apparently, I eat. Work is a blessing because it allows me to shift my focus; to problem solve, which is of course, my passion.
And I seek inspiration… Here are some thoughts that keep me moving. I hope they do the same for you.
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